Noah had an opthamologist and orthoptics appointment on Wednesday. We thought we'd seen an improvement. The doctor didn't see that. So gutted was putting it mildly. The doc was fuming that Noah hadn't had his pediatrics appt. He needs this so that he can be referred for his scan. We need the scan to see if there is anything else going on. The doc got his nurse to fax the hospital there and then. He told us if we hadn't heard anything in 2 weeks to call his secretary and he'd sort it. Well yesterday I got a phone call from the hospital offering us a pediatric appt for Monday morning at 9.15am. So at least things seem to be moving. The doc did talk about other tests that he thinks Noah will have done and mentioned that he thought he'd probably have to refer Noah on to Great Ormond St Hospital (GOSH). Obviously GOSH is the best of the best but its making it more official that they think that possibly its not DVM. The one positive that was said was that Noah is a smiley baby and blind babies generally don't smile. Orthoptics also raised some issues with is eye reflex's but until she's seen him a couple of times she can't really come to a conclusion. So again we wait.
I'm trying to be as positive as possible but its just not easy at the moment. The emotion on Wednesday when it all sunk in was anger. I was really surprised by that. But then I look at my gorgeous little boy and I feel so privileged to be his mummy....he really does make me feel better every time I look at him.....he is just so happy and he already has a lovely little sense of humour. And his laugh does honestly fill my heart with joy. I am just so afraid of letting him down.
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